My name is Kacy Stickler. I am writing on behalf of my brother, Adam Barlow.
Adam was diagnosed with level 3 autism at 18 months old. I have never known a different version of Adam.
Throughout Adam’s years, we’ve spent a lot of time advocating and healthcare has been no exception. With Adam being nonverbal, it’s been such a challenge finding doctors who will listen to us. Who understand autism. Who understand those like Adam.
We fought tooth & nail to get into the Lee clinic for 4 years. And we were estatic for our first visit. I don’t think I can truly put into words the breath of relief being in a clinic who just gets it. From check- in to check out, I felt no sense of anxiety that we often experience at other appointments. Adam is 6 foot 3, 250lbs. His intimidating stature makes it challenging from the minute we hit the door in most places.
These doctors care, they understand. And it is quite frankly neglect to whoever decided we cannot fund this clinic. This community needs doctors, nurses, receptionist, etc who understand.
Our time as a patient was short, but so impactful. As normal men and women, if you need to see a specialist, you’re able to go. How is this any different? Being versed in autism or IDD is a specialty. What happens when there is no one with this knowledge to turn to? This community doesn’t even deserve answer that question brings.
Autism is 1 in 31. The supports need to be increasing, not decreasing. Let’s stand and be the voice of those that have none.